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  • Community Forums - GBS|CIDP Foundation International Forums
    A place for forum uses to find help and support or to post comments and questions about the GBS-CIDP Foundation International Forums
  • Effects of GBS over 2 years later
    Hello, I had GBS and was hospitalized for two weeks in August of 2015 Recovery took a long time Now, 2 years and 4 months later, I have concerns that I can’t find a concrete answer on I still experience muscle soreness and pain, in my knees and down to my feet, and in my forearms and hands At times, my hands can be very shaky, especially in my fingers Also when doing physical things
  • Axonal Guillan Barre (AMAN) - GBS\|CIDP
    Hello! I’m reaching out to the few of us that have been diagnosed with the AMAN form of Guillan Barre (Acute Axonal Motor Neuropathy ) I say the “few of us” because from what I know, we are the exceedingly rare form of Guillan Barre… perhaps 3,000 cases world-wide and most of them are in Asia The viral nervous system damage we suffered is due to an attack on our actual nerves (axons
  • GBS-chance of recurrence - GBS|CIDP Foundation International Forums
    I had GBS – Miller Fisher Variant in 1997 when I was a teenager, we don’t know what caused my GBS it was either infection or vaccine since both happened at that time Would it still be very rare to get GBS a second time around with this medicine, or would I be “playing with fire” in this case?
  • Need GBS Dr around Boynton Beach Florida
    My Mom is going through a bout of GBS for the 2nd time in 11 years We had an amazing Doc in NY last time, Dr Michael Swerdlow, but unfortunately she’s in SE Fla now She was in Del Ray Hospital and is now in Boynton Health Care Center Does anyone know a good neuro that treats this disease? HELP!!!
  • Info tips on residual GBS symptoms? - GBS\|CIDP
    Assuming that this is indeed GBS, it sounds as though you had a relatively mild case, which is good reason for optimism I am five years out and am doing well, but have a small number of residual symptoms The main one is some residual numbness in one foot, which can sometimes affect walking and other physical activity
  • For those who get regular IVIG infusions, how often do you . . . - GBS\|CIDP
    Just out of curiosity, for those who get regular IVIG treatments for their CIDP, how often do you get them? Once a week, once a month? Do you feel that such a maintenance keeps symptom free or something close to it? Thanks, Bryan
  • memory loss - GBS|CIDP Foundation International Forums
    With the gbs, I ‘v ehad to reprogram meyself to talk again, to read again, to think things out in order again, to spell, and correct errors, to read in a straight line, because my eyes jumple the letters around now I used ot have almost perfect reading writing spelling skils, but now it’s pretty bad, expecislly whne tired
  • Flare Up at 6 months post GBS diagnosis - GBS\|CIDP
    I was admitted on October 6, 2016 with advanced GBS I spent 4 weeks in ICU on a ventilator receiving IVIG during that time and then an additional 4 weeks in rehabilitation hospitals before returning home for outpatient therapy The 6th of April was 6 months since I was admitted About 4 days ago (April 11) I started to struggle with tingling in my feet again It has since spread up to my
  • GBS: How do adult patients feel during recovery?
    How do the GBS patients compensate for the numb fingers? My DH’s body coordination balance is improving slowly as he learns to feel his muscles (legs are still numb), but his fingers are much harder to control He works on the computer mostly at his work, so I wonder how he could improve it when he needs to go back to work





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